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[PKU Survivor]

Living With PKU



Living With PKU




Living With PKU is an introduction to Phenylketonuria written by someone with PKU for people with PKU.

But who am I to be talking about PKU?

I’m Steve and for my whole entire life I have lived with a condition called Phenylketonuria. My whole life I’ve never had what many would consider a normal meal. Even in school my packed lunch was just different enough for others to notice. Every now and again I would get asked “Why is your bread round?”

When I replied “It came out of a tin.” Most of the other kids would start calling me things like weirdo…. You get the picture.

But every once in a while someone would answer back with just one simple word.

“Why?”

That’s when I would start to tell someone about my PKU. Can you imagine two seven year olds in the playground talking about what they can and can’t eat regarding PKU?

Over the years I have amazed my dietitians by keeping my phe levels on track throughout my whole life, in fact they have barely been over at all. My current dietitian was very surprised about how independent I am with my diet. Since my blood test results show how good I am with my diet she is quite happy to keep things the way they are.

If it ain’t broke don’t fix it.

So I wrote this EBook explaining how I manage my diet on a day to day basis, also sharing some stories about what it  was like growing up with PKU.

Who will find this useful?
Someone coming of age and taking control of their diet New parents who has just found their new born has been diagnosed as PKU Perhaps you know someone with PKU and you’d like to find out more Perhaps you are returning to the diet Or you might already be on the diet and are curious how someone else has handled it
Now at this point I have to stress that this is not any medical text and no doctors were involved with the writing of this EBook. It is purely based on my experiences as someone with PKU.

I can tell you;
What it’s like to stay on such a strict diet and how important it is to keep yourself healthy What PKU is from a sufferers perspective What you can and cannot eat
In the EBook I also explain how I’ve managed the diet despite working around lots of food that I cannot eat!

Just because someone else has PKU it doesn’t mean that the diets are the same, in the EBook I explain why this is.

I explain the difference between a vegan diet, a vegetarian diet and a PKU diet.

How much does it cost? For just the EBook; Living with PKU An Introduction to Phenylketonuria is £9.50.
[CLICK HERE TO PURCHASE]


What else is included?

You get a 7 page report Healthy Eating with PKU for free!

Here I explain about how it takes a little bit more than just drinking the PKU formula to actually be healthy.

So that’s two items;
Living With PKU Healthy Eating With PKU
So that’s an EBook and a free report for the price of £9.50
[CLICK HERE TO PURCHASE]

Living with PKU is an pdf EBook you can read it online or you can download it and run on Microsoft Word ’07 or later.

There is no waiting around waiting for delivery by post. Because it is a digital product delivery of the product is almost immediately after you pay.
[CLICK HERE TO PURCHASE]

Contact Email steve@pkusurvivor.com
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